“It’s my app for sick people”

The Mighty. It’s my app for sick people.

My boyfriend was harmlessly looking over my shoulder at my phone and pointed to my bright red app and asked what it was. It’s my app for sick people was my answer. Truthfully though it’s a lot more than that.

The Mighty is an app, also a website, that lets chronically or otherwise ill people share thoughts, feelings, stories, advice and more. I found an article posted by The Mighty one day while scrolling through Pinterest. “Twelve things people with chronic illness wish there loved ones would say more often”. I clicked on it. Usually when I see heading like that I kind of cringe. Was this written by someone who is even sick? Do they get what I’m going through? Is this whole article going to be about telling me that they love me more or catering to my every need?

I was surprised with the content when I took the time to read it. The Mighty is written by the people (the sick people) for the people (the other sick people). It is an amazing resource for chronic illness sufferers like myself. Chronic illness can often times be a really lonely thing. It can feel very isolating to think “I’m the only one going through this. Nobody understand what I’m dealing with” but The Mighty changes that. It allows for connection with people all over the world who DO get it. A lot of illnesses like endometriosis can be really challenging as the symptoms often feel limitless and doctors don’t have a lot of information available to help. Reading stories from other people and having the ability to post thoughts or questions to each other can be so helpful emotionally and sometimes medically.

The Mighty has such a variety in their community. They have articles and message boards for people that struggle with everything from mental illness, to disease. Their tag line kind of says it all: “We face disability, disease and mental illness together”.Is that ever true! The feeling of community when you step into the pages of their website is instantaneous. That togetherness that they advertise is real and raw and present. They have over 600 topics to read and explore.

This community isn’t just for people suffering with these things. They have a lot of wonderful resources for family and friends to better understand the struggles that their loved one face. I would encourage everyone who struggles with mental illness, chronic illness, disease or disability (and more) or knows someone who does to take a look at The Mighty.

My next post is going to be about one of my new favourite women so stay tuned.

xo jess

ask me about my uterus

I very recently started a new book that I am obsessed with. Ask me about my uterus is a deep dive into all things endo. It’s written from the first hand perspective of Abby Norman who re lives painful moments of her personal life for the gain of others. Abby is amazing and smart and I wish she was my friend so that we could talk about endo and her book all day long. Ok she might think that’s weird so it may be a short friendship… ANYWAY 

Within the first few pages, Abby tells a story eerily similar to my own. She clings to her middle in the shower feeling like her pains is “everywhere and nowhere” she goes to the hospital where her pain is not taken seriously. Her male doctor is positive she’s pregnant or has an STD or a UTI. Let me tell you the pain from a UTI is NOTHING like the pain from endo. But of course in both of our experiences, this was what we were told. We both left with a prescription and nothing else. We both ended up back at the hospital a number of times. And we both finally had someone do their job and try to help us. Someone who finally validated our pain and attempted to give us relief. 

Abby writes, “A Women in pain was presumed to be lying. Guilty until proven innocent, as it were” that’s how I’ve always felt. That I wasn’t allowed to be in pain. That I wouldn’t be taken seriously. That my pain wasn’t bad enough to count. 

I’m not even halfway through this book but it’s already my favourite. I’ve never cried so much, or related so much to a book in my life. But this feels like Abby is speaking to me and validating me and my pain. I am so glad to have found it. If you or someone you know struggles with endometriosis or really any chronic pain issues as a women, please have them read this. And if you really want to try to understand a loved one I would encourage you to read it too. You won’t be disappointed. 

To Abby, thank you for your honesty, your bravery, and your devotion to women’s health. Your story will help me and so many women to feel seen, heard, and believed. 

More to come on this I promise

xo jess